Find people like you
Whether you have a diagnosis or not, we want to make it easy to find people like you. That's why we focus on your clinical signs and genetic information to connect you with similar people and relevant advocacy groups.
Discover resources you might otherwise miss
Based on the symptoms and genes you enter, we'll try to connect you with advocacy organizations, discussions, and specialists that are relevant to you. Our group has been hard at work building tools (like PhenoTips and PhenomeCentral) that help doctors find similar patients. Now we want to use these approaches to help patients and caregivers directly.
There is no substitute for the support and advice of other people going through the same experience. We help you find your community, even before you have a diagnosis.
Rare disease organizations are incredible resources for support and information. We show you the most relevant registries and organization based on your symptoms.
Everyone deserves a dream team. Discover the specialists seen by your community, and get the inside scoop on who can provide the expertise you need.
|Canadian Chiari Association||8 months, 1 week ago|
|CanLyme||8 months, 2 weeks ago|
|Joubert Syndrome and Related Disorders (JSRD) Canadian Group||8 months, 3 weeks ago|
|Rare Disease Foundation||8 months, 3 weeks ago|
|Canadian Association of Pompe||9 months ago|
PatientKind.org is a grant-funded project out of the Brudno Lab at the University of Toronto and Hospital for Sick Children. Our office is on the 12th floor of the Peter Gilgan Centre for Research and Learning in downtown Toronto, Canada.
Our mission is to connect patients affected by rare diseases with the resources and community that they deserve. We hope to develop a global user base of patients, caregivers, and advocates to help each other throughout the diagnosis and treatment process.