PatientKind.org

Discover your community, no diagnosis necessary

Find people like you

Whether you have a diagnosis or not, we want to make it easy to find people like you. That's why we focus on your clinical signs and genetic information to connect you with similar people and relevant advocacy groups.

An advocacy group with similar symptoms

Discover resources you might otherwise miss

Based on the symptoms and genes you enter, we'll try to connect you with advocacy organizations, discussions, and specialists that are relevant to you. Our group has been hard at work building tools (like PhenoTips and PhenomeCentral) that help doctors find similar patients. Now we want to use these approaches to help patients and caregivers directly.

Suggestions for searching for 'sore back'

26 Families

There is no substitute for the support and advice of other people going through the same experience. We help you find your community, even before you have a diagnosis.

15 Organizations

Rare disease organizations are incredible resources for support and information. We show you the most relevant registries and organization based on your symptoms.

Partners

Recent organizations

Organization Joined
National gaucher foundation of canada 6 months, 2 weeks ago
Canadian Chiari Association 1 year, 3 months ago
CanLyme 1 year, 3 months ago
Joubert Syndrome and Related Disorders (JSRD) Canadian Group 1 year, 3 months ago
Rare Disease Foundation 1 year, 3 months ago

About

PatientKind.org is a grant-funded project out of the Brudno Lab at the University of Toronto and Hospital for Sick Children. Our office is on the 12th floor of the Peter Gilgan Centre for Research and Learning in downtown Toronto, Canada.

Our mission is to connect patients affected by rare diseases with the resources and community that they deserve. We hope to develop a global user base of patients, caregivers, and advocates to help each other throughout the diagnosis and treatment process.

PatientKind.org is proud to use the Human Phenotype Ontology and PhenoTips.

The team

Orion Buske Orion Buske is a postdoc at SickKids Hospital and directs the development of PatientKind.org.
Dorin Manase Dorin Manase is a bioinformatician and designer with experience building patient databases and analyzing genomic data.
Julian Mazzitelli Julian Mazzitelli is a software developer, entrepreneur, and student at the University of Toronto.
Michael Brudno Michael Brudno is an Associate Professor at the University of Toronto and directs the Centre for Computational Medicine at the SickKids Hospital.